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7 year old Neon has Medulloblastoma (brain cancer) and is currently being treated by the NHS with XRAY Radiotherapy in the UK. Although the NHS have acknowledged the treatment could damage Neon beyond repair or even cause premature death; because of costs they refuse to release him to undergo a more effective, less invasive and painless treatment called Proton Beam Therapy, being offered in America. Unfortunately, as Sally has been denied Legal Aid, she is appealing desperately to everyone to help her raise £250,000 emergency funds to mount an immediate court appeal, to receive the Proton Beam Therapy.
Read more at Neon Roberts’ appeal page.
ANH-Intl comment:
It says something pretty damning about the UK’s medical establishment, in the form of the National Health Service (NHS), that it forces a 7-year-old boy with brain cancer to receive damaging whole-brain radiotherapy against his mother’s wishes. It becomes downright perverse when we understand that the NHS is denying Neon Roberts a far less dangerous form of cancer treatment – proton beam therapy – when it has funded patients to go abroad to receive it in the past.
We wish we were exaggerating, but we’re not. These words are taken directly from the NHS webpage on proton beam therapy: “Which cancers does it work best on? Some very rare cancers including tumours affecting the base of skull or spine [such as medulloblastoma] can be treated with high-energy proton therapy...
“It directs the all important radiation treatment to precisely where it is needed with minimal damage to surrounding tissue. The treatment is therefore particularly suitable to complex childhood cancers...
“If a patient’s consultant feels that proton beam therapy might be a suitable treatment for one of their patients they need to complete the NSCT Proton Therapy Referral form...and submit it to the panel. The panel will then decide whether the case is suitable for proton beam therapy and if so confirm back to the patient’s doctor that a referral overseas can be made [which will then be funded by the NHS].”
True, medulloblastoma does not appear on the NHS’ ‘list of approved diagnoses’ for proton beam therapy, but a recent paper in the British Journal of Radiology – held in the online NHS library – states that medulloblastoma is, “Considered ideal for proton therapy”. When the Neon Roberts story broke, the Science Media Centre did its usual thing and assembled experts to defend the mainstream scientific view; according to Professor Tim Maughan, Professor of Clinical Oncology, MRC-CR-UK Gray Institute for Radiation Oncology and Biology at Oxford University: “Recent improvements in the precision with which the treatment is delivered due to [several others and] proton beam therapy have all reduced the doses of radiation given to critical normal tissues near the cancer and this reduces side effects further. All of these treatments are available through the NHS either in UK hospitals or through the national proton beam therapy service which funds suitable patients to receive proton beam therapy at designated overseas centres”.
Clearly, then, proton beam therapy is considered an option for medulloblastoma by respected, mainstream oncologists. So why is the NHS forcing Neon to have a treatment that frequently leaves children dependent on their parents by age 30 and coping with, “Severe cognitive/endocrine disabilities”? Is it simply arrogance? Or are UK parents facing a medical system that will go to any lengths to dissuade people from resisting it?
Whatever the reasons, Neon Roberts needs your help. Please do all you can.
Related articles
BREAKING NEWS!! Neon Roberts forced to have radiotherapy
Neon Roberts update: Judge orders further brain surgery against mother’s wishes
Government tyranny vs parental rights in the UK
Comments
your voice counts
Danny Beattie
23 January 2013 at 9:07 pm
It's a shame that you make it so difficult to make a donation. Why have I just wasted 30 mins and I have been unable to make a payment? This just puts prople off! Who cares if the country I'm donating from doesn't correspond with my mobile from another country, I'm not trying to steal from anyone, I'm trying to help someone!
Now you're not accepting my comment because the name I entered belongs to a registered user. Of course, I am a registered used and it's my name! What is going on here?
Brenda Johns
23 January 2013 at 11:55 pm
I knew things were bad but this astonishes me. Mrs. Roberts is being treated like a common criminal. When she is only trying to do what is best for her son. This is where Big Money comes into play. You can't have a member of the public showing the establishment that there are other alternatives. Good for Mrs. Roberts that's what I say.
Moira Love
24 January 2013 at 12:24 am
Please help
Eoghan
24 January 2013 at 3:26 am
Can someone who knows sally please inform her that there is a completely natural treatment for cancer called Gerson Therapy, Pioneered by Dr Max Gerson in the early 1900s. His daughter Charlotte has followed in her father's footsteps and she's the one to call. Her clinic is in Mexico. I'm sure she can be gotten on the phone. Anyways the therapy is really simple and highly successful at treating all types of cancer.
I recommend any of the three Gerson Movies: The Gerson Miracle, Dying to Have Known and The Beautiful Truth.
Website:
www.gerson.org/
If that's not favorable to her, there is another Doctor called Stanoslav Burzynski who has come up with a more inventive approach using Anti-neoplaston Therapy. He is based in Houston I think. Also hugely successful and recently approved by the FDA after a 15 year battle in the courts.
I recommend watching the movie "Burzynski".
Website:
http://www.burzynskiclinic.com/
Peace and love and get well soon Neon. It is possible!
Eoin
Anonymous
24 January 2013 at 12:23 pm
Really do have a look at the Anti-Neoplaston treatment, it seems very appropriate for small people.
ANH Admin
25 January 2013 at 4:29 pm
Hi Danny
We'd like to point out that this is not our appeal, and so unfortunately we can't do much to help with the donation problem. Also, all comments go into a moderation queue which is stated once submit is pressed.
We've contacted the gofundme organisation, who got back to us very quickly, and they have said that it must be a problem with the paypal account connected to the appeal. With this is mind we've contacted Sally through the 'contact' button on the appeal in the hope that there might be something that she can do — and quickly. It's awful that people are generously trying to support her little boy and the funds aren't going through due to a paypal blip. Please please try again - for Neon's sake!!
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